I feel like I’ve fallen down a hole. Like I’ve lost my footing and I don’t know where to step next. My head is spinning at the moment. I’m not sure how to deal with this stuff. And I have to deal with it before I open it up to friends/family/kids. I’m not sure what to make of it all. Maybe it’s nothing. Maybe it’s something. Maybe it’s metastic from the cancer many years ago. Maybe it’s all coincidence. Maybe it’s nothing…yes, I’d like that version. It’s nothing.
I went to the primary doctor yesterday because I have an ear infection and I got antibiotics from him. We discussed all the testing and other doctors he sent me to and I caught him up on what seems to be heart-related fainting. But then the neurologist called me because I called his office asking that if the heart dr says it’s my heart that’s making me faint, then can I call off the MRI of the brain that’s scheduled this week because I don’t need it.
But no….so neurologist surprised me by telling me that last week’s Brain EEG was abnormal. Brain waves on the left side were slower at times. So I definitely have to have an MRI of brain this week and probably another EEG but one that takes even longer to make sure that what they found in the first one was really was an abnormality. Oh fun. Here I thought the fainting was just heart related. But now there could be more to it according to the neurologist.
What the heck happened? I hit age 55 and all hell broke loose? Really? My head is spinning but I’m not sure if it’s my heart or my brain making me dizzy…could be either of them I guess. WTH!?!
I want to cry. I want to scream. I want to put my head in the sand and block it all out. I want someone to hold me, hug me, and tell me it’s all ok. Even if it’s a lie. I don’t care right now. Just let me put my head on your shoulder and you take care of me for 5 minutes. Let me lay down my burdens or you carry them for a few minutes so I can get my bearings.
Oh and the heart doctors’ group are a bunch of idiots. So I’m going to get a second opinion because it’s like the right hand has no idea what the left hand is doing. They were scheduling me for tests that they didn’t tell me about and passing me off to a colleague whom I’d never met. And some of their office staff are rude, dismissive and angry people. I don’t need that…
I have a second opinion scheduled with a well-known heart doctor appointment next week so we’ll see how that goes. If the new heart doctor’s nurse is any indication of how his office is run, then I’m definitely going with them even though they’re over an hour and 1/2 away. Patient, kind, professional, knowledgeable and explained it all to me in simple terms…that’s what I need and want in a doctor who’s going to work on me in a life or death situation – aka heart. Don’t you think?
I’ve been through so much in my life. Yes, I want to control what I can. Yes, I know what I want in a doctor/surgeon and I will find the right one that works for me, with me. I won’t just go ahead and have some test done to get it over with unless I know who’s doing it, why and how they’re doing it. That’s how I survived this long and I’m not backing down now.
Thanks for reading. I appreciate you. I have good friends both here on blogging and in life. Thanks for letting me process before I have to tell the in life ones. I think I’m just going to stay quiet until I hear more about the MRI results…because why scare them? Right? Same with the kids. I’ll just keep going….like the energizer bunny…because nothing’s for sure…and “it ain’t over until the fat lady sings…”
Oh my goodness, Janie. What a scary time for you. I 100% agree about getting the second opinion from the heart doctor. You are totally right that a one and a half hour drive is completely justified if you are more comfortable with the doctors and office there. For such an important procedure, it is definitely worth it. Sounds like the heart doctors’ office you went to needs a lesson in empathy. This may be all old hat and commonplace to them, but they need to put themselves in your position and to treat you the way they would want to be treated if roles were reversed. You need kindness now, not rudeness and dismissiveness. Sending huge virtual hugs and praying that your guardian angels stay close by your side through all of this craziness and help to give you peace and comfort.
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Thank you Beth…much appreciated! I think that’s part of the issue here as well – perhaps it’s old hat, but to me it’s shocking news and I need answers, not being dismissed. Next week is the 2nd opinion doctor and we’ll see how it goes with him. In the meantime, I’m just trying to relax. Take it day by day…and cherishing the virtual hugs.
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Hey Janie… sounds like you’re really going through it at the moment. And I know what you mean about hitting 55 and your body going to sh*t… that’s pretty much what I’ve felt too!
You can feel free to process wherever you need to… I’m sure it feels scary and lonely, and our minds play tricks and try to convince us we’d be better off being cared for by someone/anyone (even someone unsuitable!!)… But I know enough about you to know that you’ve got this – you’re a strong woman, and you know what you doll and don’t need and what you will and won’t accept.
So, keep processing, keep sharing, keep getting the right treatment from the right specialists. And look after the most important person in this scenario… YOURSELF.
Sending lots of love ❤️
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I appreciate your sharing all that you’re going through. I don’t know if your children need to know until you have more information. Yes, I think you’re correct in getting a second opinion, especially from a doctor you trust.
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Thank you. I’m letting this go one step at a time. Slowly and allowing kids to know certain things so that it is not an all-at-once burst of information. So far, they’re not too concerned so that’s ok because there’s no need at this moment. We have to get used to the whole thing first…baby steps. 🙂
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Sending big hugs your way. Very scary to have to deal with alone. I can understand you not wanting to tell the kids though.
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Thanks Janet. I ended up telling them a bit so we’ll see how that works out. So far, I think they’re pretty unfazed because I’m still functioning at full capacity.
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Big hugs sent your way. You’ve been through a lot, more than most. I hope that all works out for you, and soon.
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Thanks Rob. Much appreciated hugs…perhaps there’s some type of cosmic reason for all this…in the meantime, I’m taking baby steps…forward…
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Totally understand. Youll love this non-fiction: my husband had a heart attack, they couldnt / didnt diagnose him for 2 days (what) and refused fluids for those 2 days (WHAT). I tell the heart hospital admitting physician the doctor I want to do the heart scan. Another Doctor slips in early in am, does the scan, finds a block, does a stint charges 40-50k. I call that piracy. The doctor we asked for never got the chance to see my husband because now he was Dr. —s patient. Get the information ahead of time and do as much research as you can. Please!!!
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Oh my goodness! YIKES!! Thank you for sharing your experience even though I’m cringing for all of you…that’s just incredible what can happen. I’m so sorry….and 40-50K? What an absolute mess….big hugs. I hope your husband has healed and is doing well…and that you win the lottery so you can pay the medical bills! Hugs…
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I am so sorry.
Please keep writing here. We are all here to support you.
My advice – get a book and write everything down. Ask drs to send you test results. Be your own coordinator.
If nothing else it helps gain a sense of control. It also is a way to ensure you know what is going on and can provide the right info to drs.
Hugs and love to you
Anne
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Thank you Anne. I have a notebook already that I’ve been writing in and that helps. I appreciate the support and kindness. Hugs and love are cherished. Thanks…
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You must be going crazy with worry. I believe in getting as much information as possible so that you can make an informed decision. When I used to take my mom to the doctor, I recorded the appointment because sometimes we needed to listen to things over again to ensure we heard what we thought we heard.
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Thanks Pete. I have a notebook where I write down my questions for the doctor and where I write down the answers to those questions as well as who told me what, where/when appointments are and my friend is coming with me to the appointment so 2 heads are better than one…so far…great idea though, I may do that additionally! Thank you!
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I’m thinking of you as you head into all of this! You’re strong!! You’ve got this!💗💗
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Thank you LA ❤️❤️
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I’m so sorry–this sounds so heavy. It’s a lot to carry, isn’t it? Sending prayers and good thoughts your way.
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Thank you Kay. Nice to see you here. I’ll have to stop over and visit your blog too. Love the name! 🙂
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I hope all goes well for you❤️I haven’t followed your blog for long, but reading your post I wonder if you have taken any of the shots and boosters? If so, did the fainting and symptoms start after that? (Since far too many people have reported adverse events after their shots or boosters). Hopefully you don’t mind the question.
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Hi Ease. I don’t mind the question. It’s actually a good one that I hadn’t thought of myself. And as long as nobody beats me up over the answer, it’s no…I haven’t had the shots. And I haven’t had Covid either. ❤️
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I haven’t had any shots either, somehow it all has become a sensitive subject. I hope all goes well❤️
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Thank you Ease. I know it is a sensitive subject for many…I hope you stay healthy too…❤️
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All I can say is this too shall pass. Ever the optimist, or at least I try to be, I hope it all turns out to be next to nothing and/or easily treatable. It sucks to have to deal with it all at once, but it seems that’s often how life unfolds. I often wonder why the good stuff doesn’t happen all at once in the same way!
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Good question – why doesn’t the good stuff happen all at once? Or maybe it does and we don’t see it that way because it’s a whoosh of wonderful and we’re so enraptured by it that we are happy?! Yes, this too shall pass, you are right. Thank you…I like your positivity!
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